Support Links

Since some of you are new to feeding tubes, we would like to share a few of the websites, online groups and resources that have been the most helpful for our own families. These include, but are not limited to the following:

Complex Child Magazineis a free online magazine written by parents for parents. The editor has a PhD and has acquired extensive medical knowledge through her personal journey with her child who has extremely complex medical issues. There are many tube feeding articles in the archives as well and can be found athttp://www.complexchild.com

Feeding Tube Awarenessis dedicated to providing parents and caregivers with the information needed for day-to-day life with a tube fed child. Moreover, they strive to raise awareness so that children who are tube fed enjoy increased acceptance in society and parents have greater support in their care. They can be found on Facebook (Feeding Tube Awareness) as well as online athttp://www.feedingtubeawareness.com

Mommies of Miraclesis a growing international peer-driven support group of mothers who have children of any age (infant to adult) with complex medical issues, rare or undiagnosed conditions, and/or developmental disabilities. They can be found on Facebook (Mommies of Miracles) and online athttp://www.mommiesofmiracles.com

The Oley Foundationprovides support for people requiring enteral feeds, as well as a page dedicated to exchanging medical supplies. They can be found at http://www.oley.org

Parent-2-Parentis an online parent support group for kids with a variety of medical conditions or special needs. They can be found athttp://www.parent-2-parent.com

Website By: PATRICIA RODOLFF 2013